Should the state be allowed to force a cancer treatment?

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5 votes (62.5%)
1 vote (12.5%)
2 votes (25%)

8 members have voted

January 20th, 2015 at 1:39:49 PM permalink
petroglyph
Member since: Aug 3, 2014
Threads: 25
Posts: 6227
Quote: Fleastiff
Have you considered cryoablation of the nerves giving you pain?
That may be the way I go with the Lumbar/sacral. Some nerves grow back after about five years. I am told at about 1/2 inch per year. I asked because many nerves were severed when I had neck resection last year. I think some are growing back, it's really weird, about 1/5th of my head is numb, down from 1/3. I can handle the numbness easier than the pain. One surgeon I talked to about the lumbar gave me a 40% chance he could make it better. So far, I haven't taken him up on that.

I am concerned about my lifetime accumulation of the steroid injections though [mostly kenalog] I lost count at around 40. I am concerned about the accumulation as I have read they can cause cancer? They don't appear to effect the immune system however. I was do for an epidural the year before last when the scare came around that a bad batch[ kenalog] had made it around the country with around 85 deaths and over 300 cases of spinal meningitis being injected in peoples spinal cords. I never liked needles anyway, that scared me out of it until last week. Pain eventually overrides fear.

Spinal problems aside, the perineum thing is life threatening. I can mostly deal with pain. So finally after about 10 dr's and associated staff I've been through, just in the last 4 months, the gut surgeon yesterday gained a lot of my respect when he said I needed to get to a "real" hospital. He is working to get me back into the Mayo in Phoenix.
If anyone has ever seen one of the clinics, they are beautiful. They are the state of the art for medical care. The parking lot alone is a botanical garden. If I die there, then it couldn't be helped. If anyone has a chance of surviving, it is at one of these premier facility's. I've been to hospitals for treatments from Phoenix to Anchorage for stitches and shots and other stuff, but if something is really wrong with a person, get to one of these facility's. I was surprised to find out that the Mayo Clinic is Non Profit! Amazing. It still isn't cheap, but's it's high quality. My last surgical team has been together for 18 years, and they just do necks. They have a team that just does dental, etc.
At my first appt. my surgeon [Dr. Hinney, look him up, Phoenix Mayo] had to use a borrowed nurse to do an fna, she came in and apologized for having tooth shrapnel in her hair when she came in, interesting.

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I see nothing wrong with your self selected treatments. They have not killed you and they may have helped.
That is how I feel about it as well. It angers some Dr's to find out I refused radiation. I have argued with them about side effects, and have now fired 3 of them.
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I would not refuse a PET scan at all.
I had one, which I carry with me including a film copy. It is one test I can use to find out if a new Dr. cares or not. Those that are interested at least look at it even if they are not qualified to read it. Others just want the 3 paragraph interpretation from a radiologist. I have found it repeatedly helpful to keep good records, regardless of the portability and interconnectedness of the "system", I find myself in. A month ago, I was able to whip out a copy of my ischemic colon which was pretty helpful in getting the ball going, as far as perineum diagnostics.
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Heating a pool may be cost prohibitive but a smaller hot tub is not. Or go to a health club/gym/spa such as might be found inside a resort hotel or a casino.
Good idea, Fleastiff. You are obviously very intelligent and I need to bounce stuff off of real people. I get as much help, or more from physicians staffs and assistants as I do from Dr's. I am beyond Dr. worship or looking for blame, beyond vanity or apprehension or just being appeased or referred. I have taken responsibility, to be the one most involved with my healthcare. Some alopathic, some natural, some spiritual, although the spirit is getting very tired. I am satisfied with my effort, but not quite done. If I get one of those out of body experiences, I will be able to say "he put up a good fight".

The state or thought process involving healthcare as it is right now, will allow me more pet scans, which are around 7k, but they are covered. They are also radioactive as hell. I seem to have taken the position of paying the natural guy out of pocket. That as well, is spendy. I would not expect any healthcare insurance to cover natural treatments as even my natural guy claims about 85% are probably Charlatans. There damn sure is no guarantee's either way I go, but from what I witness, this natural way is certainly kinder. I took interest in your post of the Florida case of the Canadian girl who died. I wonder what type she had and at what stage she decided to try a natural therapy? I see many who try "voodoo" medicine or natural medicine don't try it as a primary care modality, they show up with stage 4 and want miracles. I had stage 3, I am not currently staged.

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I see no reason to try to gain weight. Eat if you are hungry. Don't eat if you are not. Eat well.
Part of my thinking is I needed some body reserves to fight the next surgery. Those surgery's kick the bodies ass so hard it just seems to eat all the protein rapidly away. I had a colon resection in 95 with peritinitus that removed 38 pounds in around 8 days? That may be the current culprit in my malaise, adhesions? One theory is either the guts are laying on the nerve bundle , or it may be referred pain, hence the epidural, or a prostrate problem with epiditamitus.

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H2O2 ?
I have done both oral, for a month with food grade and IV. I don't know if that is why they were unable to find a throat tumor or not? Didn't seem to hurt. I also have done IV chelation therapy. Haven't tried infrared, but am interested in hyperbaric oxygen. I also have my own ultrasound machine.

This is the guy I currently go to for holistic advice: http://frankpalmersweet.com/meet.html

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Have you had an infrared scan of the area to help locate an anomaly?
Tumors are usually oxygen poor at their core. Some researchers have used a bacterium that loves oxygen poor environments to transport drugs to the interior of a tumor.
Are you sure there is a tumor? What about RSD Reflex Sympathetic Dystrophy. Excessive pain from a minor injury?
A tumor was not found, but the fna came back twice, positive for SCC. The FNA was from right side lymph nodes, right side of neck. The lymph's are filters, it was thought they were just filtering the cancer cells from somewhere, usually base of tongue. A dozen biopsy's and 19 removed lymph nodes later, they can't find the source [tumor] so have offered me chemo/rad, which I turned down. Interesting on the O2 rich/neg environment. I check my PH regularly and try to keep it in range. Thank you for your input.

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What about that giant coconut crab? I can tell it to let go of Ashley's toes and head toward your problem area.
I will take most any crab you are willing to send if edible. I especially like Bering Sea Red King crab or cold water Dungeness, thanks for asking.

I think you had better talk with Face about sending over a gift already attached to miss Ashley, but under the circumstances if she hasn't eaten it already, I can't imagine she would mind. That was one big friggin crab. Some old Red Kings were over 6ft, toe to toe.
The last official act of any government is to loot the treasury. GW
January 20th, 2015 at 2:22:06 PM permalink
Fleastiff
Member since: Oct 27, 2012
Threads: 62
Posts: 7831
So what you are saying is the Fine Needle Aspiration found "something'' in the lymph nodes and they concluded its from a highly probable site but we haven't found it. Well, my first thought is if you can't find it where you think it is; start looking elsewhere.

pH of yourself or your urine or blood is not what I'm talking about. I mean a highly localized pH gradient and oxygen gradient.

There are some theories that electrical conduction is mediated by the immune system and immune system disruption can cause nerves to fire off. Think of stasis diabetis. Blood pooling in the legs due to poor circulation, varicose veins, lack of exercise, etc. Its a localized abnormality that causes lots of iron to get released and the body sort of rusts from the inside.

That is why I suggest infrared thermography to look for hot spots in your body. Find a hotspot and do imaging and aspiration there.

Hyperbarric oxygen is wonderful and often used in Russia and Europe far more than in the USA. Many people build their own dive chambers or use the soft portable chambers often seen at football games.

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I think you had better talk with Face about sending over a gift already attached to miss Ashley, but under the circumstances if she hasn't eaten it already, I can't imagine she would mind. That was one big friggin crab.
Sure was. You can see why harboring one in Hawaiian waters is a mandatory prison sentence. They don't want the tourists too scared to come visit.
January 20th, 2015 at 6:47:03 PM permalink
petroglyph
Member since: Aug 3, 2014
Threads: 25
Posts: 6227
Quote: Fleastiff
So what you are saying is the Fine Needle Aspiration found "something'' in the lymph nodes and they concluded its from a highly probable site but we haven't found it. Well, my first thought is if you can't find it where you think it is; start looking elsewhere.
The Dr's who did the second biopsy's and the Mayo were pretty convinced each, that they would find the source.


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That is why I suggest infrared thermography to look for hot spots in your body. Find a hotspot and do imaging and aspiration there.
I will look into it.

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Hyperbarric oxygen is wonderful
The idea is just to increase the O2 correct? Does IV H2O2 do the same thing? They have a chamber here at the local hospital, I think they use it for burns? I have read cancer can't live in a high oxygen content environment or a highly alkaline one either. Not sure on the reality of it though.

OT, do you have some sort of nautical live aboard situation?
The last official act of any government is to loot the treasury. GW
January 20th, 2015 at 7:29:47 PM permalink
Fleastiff
Member since: Oct 27, 2012
Threads: 62
Posts: 7831
Get that pathology opinion in writing.

What is your HPV situation. Human Papiloma Virus.

Have you ever had anal cancer... that can show up as SCC of the throat.

H202 adds free radicals but its short lived.
Hyperbaric Oxygen adds oxygen for a longer time and as oxygen not just a negatively charged ion that soon finds a proton and becomes stable.

live aboard a boat? Yes, I have two young nudist chefs, two young nudist deckhands, four young nudist stewardesses, fair winds and following seas aboard a Junk Rigged 64 foot gaff rigged Ketch. At least that is what I was SUPPOSED to have, but it seems everytime I wake up from that dream, I'm still a pauper who can't even afford a dinghy.
January 20th, 2015 at 8:14:38 PM permalink
petroglyph
Member since: Aug 3, 2014
Threads: 25
Posts: 6227
Quote: Fleastiff
Get that pathology opinion in writing. What is your HPV situation. Human Papiloma Virus.
Negative for HPV.

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Have you ever had anal cancer... that can show up as SCC of the throat.
Interesting,

This blows me away, that I have to find out SCC, can be in the anus. It makes sense. So I know you are not a Dr. but this is how I learn. Thanks for pointing that out.
I will be there [Mayo]as soon as I can get an appointment, they are very thorough, of course. But, I am not one to let this get by me either. I will search for that pathology report. Not sure if it will help now as that surgery is done? I would like to have the copy though. I would. Just cuz. This disease has completely altered my life and style. I did have a few other things I wanted to do.

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live aboard a boat? Yes, I have two young nudist chefs, two young nudist deckhands, four young nudist stewardesses, fair winds and following seas aboard a Junk Rigged 64 foot gaff rigged Ketch. At least that is what I was SUPPOSED to have, but it seems everytime I wake up from that dream, I'm still a pauper who can't even afford a dinghy.
You have mentioned boat things in the past, I wondered. Partially because I lived aboard my 32' Uniflite in Alaska for 4 summers in different ports and then the last year, all year do to circumstances with x. It was impossible to force the heat below the knees so I could walk around in a t-shirt but I needed fur boots on. lol

Ah, the nudists. Love it. We had a houseboat [ Sun Princess] on Lake Powell on the Colorado behind Glenn Canyon dam. Beautiful. I am told that a few years back, Playboy bunny's complete with chefs rented a houseboat and went uplake. They were so much trouble when they wanted to rent a boat again, they were not welcome. The rumor is doing pornographic acts coming into the marina are unwelcome with the harbor master?
The last official act of any government is to loot the treasury. GW
January 21st, 2015 at 12:18:54 AM permalink
Fleastiff
Member since: Oct 27, 2012
Threads: 62
Posts: 7831
Dickerson propane heater?? There is a doohickey on it.
Think: if you need fur boots but could wear a tee shirt... somewhere there was a line of demarcation.
So when you slept, where was the area that is giving you pain now? What was it close to? Heater outlet? Air inlet?

I was not engaging in pornographic acts with my imaginary nudist crew, I treated each of the non-existent young girls with respect on an individual basis.

Note: With SCC in the throat the docs are looking for a non-throat source that is cancerous but not necessarily SCC, just a cancer that metastizises as SCC in the throat.
January 24th, 2015 at 6:25:23 PM permalink
petroglyph
Member since: Aug 3, 2014
Threads: 25
Posts: 6227
Quote: Fleastiff
Dickerson propane heater?? There is a doohickey on it.
Think: if you need fur boots but could wear a tee shirt... somewhere there was a line of demarcation.
So when you slept, where was the area that is giving you pain now? What was it close to? Heater outlet? Air inlet?

I was not engaging in pornographic acts with my imaginary nudist crew, I treated each of the non-existent young girls with respect on an individual basis.

Note: With SCC in the throat the docs are looking for a non-throat source that is cancerous but not necessarily SCC, just a cancer that metastizises as SCC in the throat.


That is the boat heater I went with, I slept in the focsle most of the time. It never was really that warm there and the humidity probably averages in the mid 90's? I loved my little heater, I got it because there were no moving parts, gravity fed kerosene or #1 diesel. I installed an aux. fan and enjoyed viewing the little diesel flame. The salon was the only warm part of the vessel. One time when I forgot to leave the head door open, when I went in there in the morning the water in the bowl was frozen. I then went to 50/50 with anti-freeze for the really cold nights. A few times when tied up in Homer Ak, I was able to walk around the outside of the vessel in the winter. Good times.

The heat was mostly about 15 feet from where I slept, I usually had an electric heating pad in my sleeping bags with me, when I had shore power.
The last official act of any government is to loot the treasury. GW
January 24th, 2015 at 8:16:58 PM permalink
Fleastiff
Member since: Oct 27, 2012
Threads: 62
Posts: 7831
Quote: petroglyph
I installed an aux. fan and enjoyed viewing the little diesel flame. The salon was the only warm part of the vessel.
The heat was mostly about 15 feet from where I slept, I usually had an electric heating pad in my sleeping bags with me, when I had shore power.
Strange. Why were you fifteen feet away from the heat? Why not sleep in the warm salon rather the forecastle bunk area. Why an electric blanket inside your sleeping bag? Couldn't you find a young nubile female who needed a warm place to sleep in return for doing the cooking and cleaning?

Are you aware that diesel exhaust fumes can cause a good many problems including SCC and that truckdrivers have unusually high rates of scrotal neoplasia perhaps due to diesel fumes but also perhaps due to alot of women at truck stops giving sex in return for travel.

I admit most of the humans who get SCC get it from the lungs if exposed to diesel fumes but there other primary sites too.
January 24th, 2015 at 10:31:44 PM permalink
petroglyph
Member since: Aug 3, 2014
Threads: 25
Posts: 6227
Quote: Fleastiff
Strange. Why were you fifteen feet away from the heat? Why not sleep in the warm salon rather the forecastle bunk area. Why an electric blanket inside your sleeping bag?
As you are aware, everything on a boat has a place and if not being used, needs to be in it's place. The Dickenson diesel heater was mounted on the aft bulkhead, and the bed was very comfortable in the V-berth. I slept very well, but it can take 7 hours to get 5 hours of sleep with fishing vessels coming and going all hours as well as the rocking of the boat. The salon although attractive and functional didn't really suit my bedding needs on a continual basis, mornings being short. I was living a life alone, other than work. I really love living aboard, each morning a new view, or gunkholing. Often I didn't have time to clear passage in the isle and get going for work. It was warm enough when I was sleeping. The heating pad,I have always had a bad back, it was my constant companion anyway, made things quite cozy. The bed was quite roomy, even for two.
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Couldn't you find a young nubile female who needed a warm place to sleep in return for doing the cooking and cleaning?
I went the other way, I found one that had her own place, and heat. It was necessary to have my own sanctuary anyway without having to deal with someone else at the time. It was the bitter end of my "dark" years, before love and happiness. Thanks for asking.

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Are you aware that diesel exhaust fumes can cause a good many problems including SCC and that truckdrivers have unusually high rates of scrotal neoplasia perhaps due to diesel fumes
No, although the topic is interesting, I must admit I stayed clear from it like most people. I like others just knew I didn't want it. I think another factor for truckers is the time they spend sitting. Men are not built to sit that much, the diesel fumes could be a contributing factor, IDK. I know the fumes reek more than gasoline does. Also a lot of truckers chainsmoke while cruising the open road, eating lousy food and dehydrating so as not to need to urinate. Lots of known contributors?

The chemicals I was exposed to in my earlier life for cleaning power cables, I don't believe can even be purchased anymore. Not to mention years of bathing in PCB's, pentachoraphenol, also creosote and about everything that there are now laws to protect workers from. Hundreds of ways that business can kill you, even if you live through to retirement, with 10&10. I loved my work though.

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I admit most of the humans who get SCC get it from the lungs if exposed to diesel fumes but there other primary sites too.
I am listening Sen Se.
The last official act of any government is to loot the treasury. GW
January 25th, 2015 at 12:37:27 AM permalink
Fleastiff
Member since: Oct 27, 2012
Threads: 62
Posts: 7831
Quote: petroglyph
I am listening Sen Se.
????